Reply to Does anyone have special needs kids

Yes! But she’s super small at the moment (9 wks 5 adjusted). Baby G has two rare conditions called Fibular Hemimelia and Congenital Short Femur. Basically her bones never developed properly so her thigh is 2 cm short and part of her shinbone is too short to connect to her ankle. We’re thinking if not corrected it’ll be an 8 inch different when she hits puberty. Right now she’s so small to walk its no big deal, but with with it comes other complications to her hips, which have caused her to wear a Pavlik Harness for 9 weeks. Holding her and comforting her is a challenge but on the good days she’s a wonderful loving little baby! Hopefully the harness fixes her hips and we can move on to her next phase (surgeries).