Posted in Developmental Disorders

It all started with a speech delay and now we’re being referred to a neurologist...feeling down!

Anonymous

So my 2.5 year old has a speech delay. Unfortunately my insurance won’t cover him because he’s not severe enough - that was very frustrating to hear. The SLP even threw around selective mutism- wth?! So we were referred to our regional center and they ruled out selective mutism but now is seeing he has other delays so we got him reassessed. His fine motor skills however were reported as excellent but he does have some sensory issues as well and now we’re being told to see a neurologist. This has just been all so crazy to think that what started as a speech delay is now leading to so many other disabilities/delays we weren’t even prepared for. To me - and I’m sure to many others- i thought was son was just fine and saw no other red flags for ASD but now that’s all I see and i have to say it’s a bit discouraging and the fear of the unknown is real. Until our screening with the neurologist I’ll be stuck in what seems to be this endless limbo waiting to find out what’s wrong with my son... **lets out long sigh***

  • Amanda
    Nov 22

    There is NOTHING “wrong” with him Mom and everything you are feeling is so normal I remember being there and not being sure how I felt or why but still felt like I somehow was betraying my son for being upset

  • Amanda
    Nov 22

    My journey with my son started near exactly the same way and I was not prepared for everything that was to be thrown at me as time went on but it has made me who I am it has made me HIS MOTHER. I know you are probably picturing all sorts of scenarios and ideas in your head I remember I couldn’t look at my son without crying (not gonna lie he sometimes still will get me) because IT IS SAD! You had hopes and dreams for your baby you imagined his life a certain way and now someone is telling you hey mom that may not happen THAT IS SAD, and so your grieving you grieve the future you imagined and without information the one your imagining probably seems terrifying. I want you to stop for just a second deep breath and look at your son, he’s unchanged. He is the same baby he has always been the only change that has happened is having answers (sorta). I know for me I was sad bc I thought omg his life is going to be so full of struggles, WHOS ISNT? His struggles may not look like everyone else’s but that means his blessings and in turn your blessings will not look the same either. I remember my husband and I crying 1 morning before my son went to school because he said milk. How many parents feel that emotional when a 5yr old says milk but that was my blessing that day, one another parent just wouldn’t feel so emotional about. From the day I started to change my outlook about my sons future and his struggles I have prayed to be able to help a scared mom through a time I didn’t have anybody to be there and didn’t know how they could be but I was fortunate enough to have an early intervention team that truly cared and nurtured me and molded me into a very strong very proud autism mom. And I am here for you if you need anything there’s nothing closer to our hearts then our children so please reach out. A Mack 214 at g mail

  • Rossy
    Dec 16

    Hello Dear! I'm interested in your case because I'm having the same scenario as you. How is you child now? Did you did the test? please let me know.