Developmental Disorders

Support and advice for parents of children with all kinds of medically complex situations including ADHD, autism, Down syndrome, physical handicaps, and learning disabilities.

Autism sleeping tricks

My stepson is about to be 5 and is autistic. Usually he sleeps good but lately he has been getting up super early and is wide awake. He was up before daylight today and we got woken up by him running around the house. I've tried laying him back down but he doesn't ever go back to sleep. He already gets melatonin at night. What tricks have you guys found that help autistic kids sleep bet... More

  • Angie
    1h ago

    Definitely weighted blanket and melatonin. No tv an hour before bed. Potty before bed. He def needs a certain bedtime routine with books and quiet talk and touch if he will allow think soothing....Sound machine or soothing noise that he likes.....

  • Angie
    1h ago

    Wide awake by 7 is great! Thats 10 solid hours for a five year old with autism. Many parents would love that much sleep for their kid even if typical. 👍

Does anyone have special needs kids

  • Heather
    Apr 05

    I do! My amazing 12 year old son, Gavin, was born with developmental delays (fine & gross motor)/speech delays. He has intellectual disabilities, ADHD, a mild form of autism and an anxiety disorder. His developmental age averages to the equivalent of a 6 yr old, although some skills like self care and self control are more like that of age 2 or 3. It is believed that his disabilities we... More

  • Kaitlyn
    Apr 13

    Yes! But she’s super small at the moment (9 wks 5 adjusted). Baby G has two rare conditions called Fibular Hemimelia and Congenital Short Femur. Basically her bones never developed properly so her thigh is 2 cm short and part of her shinbone is too short to connect to her ankle. We’re thinking if not corrected it’ll be an 8 inch different when she hits puberty. Right now she’s so small to wal... More

Brianna posted in Behavior Mar 25

Waking up angry...

Looking for some helpful tips on how I can help my son sleep better. He is two years old and has always woke up every 45-60 minutes during the night. Most of the time he wakes up screaming, punching, crying, and kicking. I have tried black out curtains, sound machines, night lights, humidifiers, dehumidifiers, music, changing the temperature, heavy blankets, no blankets, no nap during the day, ... More

  • Alena
    Mar 28

    Agree with Andrea, I would rule out seizures first. My ASD kid sleeps 9-10 hours without a single peep, he is 7 now, he slept fairly well when he was 9yo too. Also try melatonin and letting him sleep with you

  • Tiffany
    Apr 15

    I know the feeling. This is 10 years of the same with my daughter and we’ve tried everything . Finally getting a sleep study done. GET ONE DONE. Rule out everything. Anxiety is big with kids on the spectrum as well. My child when she was younger had a lot of anxiety. Sounds too. I have a very quiet room.

Anonymous posted in Developmental Disorders Mar 24

ADHD/ADD or just paranoia

So I have a 3 year old who is turning 4 next month. She's been in daycare since she was 2. Her dad has ADHD and I have ADD. I have noticed that when we sit down to do "homework", she still doesn't seem to know her letters struggles to remember the last letter she said. Should I get her checked.

  • Morgan
    Mar 26

    Thats good that u made an appointment with the pediatrician

  • Anonymous
    Mar 26

    Thank you Morgan

Speech and Developmental Delay at 20 months

Hi! My son was just diagnosed with a speech and developmental delay. He is 20 months and only says a few words. He also has a little bit of a developmental delay because he can’t feed himself with a spoon yet, drink from a straw, or drink from an open cup. Does anyone have any experience with this type of delay? How long does it take to catch up? Did they seem to be at the same level as the oth... More

  • Joanna
    Mar 24

    Pediatricians should be giving screenings like the Denver or Ages and Stages Questionnaire. And that's where it seems as simple as, does he have 6 words. When you meet with the speech therapist, physical therapist and/or occupational therapist, they will give an exam and recommend treatment. They look for a lot more than 6 words. Tongue movement, sound formation, pointing, nonverbal communi... More

  • Karla
    Mar 28

    Every child develops differently. You might see a catch up by age 3, if you don’t see any improvements talk to his doctor about getting help. My son had a language and speech delay, and is doing better.

Elissa posted in Big Kids Mar 20

How to help autistic gender exploring tween?

So 8 months ago my 10 year old high functioning Aspergers kid, female by birth, confessed to me that they hate being a girl, dread puberty and want medical intervention to prevent it, and identify as neither male nor female. I am having a hard time understanding them, respecting their non binary wish to be called they and child. They cut their hair boy short, dress like a boy and have expressed... More

  • Maxine
    Apr 14

    I’d be asking where this came from. It’s a trajectory that’s hard to come back from. I have a friend that said he thought he could be gay when he was a kid because of the way another man treated him. He said that he thought maybe the guy saw something “gay” in him that made him doubt his sexuality. I believe the first step is to try and find out if this is the result of something specific. Al... More

Potential ADHD in 3.8 yr old girl

So I’m worried after my preschooler’s parent teacher conference. They said she resists fine motor and greatly struggles with writing her name. They said she often needs redirection in class, has physical boundary issues with met classmates, putting a foot on a kid gently in circle time and tuning out completely when not interested. Then in roof play she follows along initially with play but whe... More

Anonymous posted in Child's Health Mar 07

ADHD pre-teen

Well, this is my first post to Winnie. Not sure what to expect but here it goes. I have a 12-yr old daughter who will be entering 7th grade next year. I am utterly terrified. She is bright, funny, sassy and well...she’s all kinds of wonderful but unfortunately she has lots of challenges too. She is severely ADHD and hyperactive beyond belief. This has impacted her grades for years and she rarel... More

  • Diane
    Mar 08

    Trust your gut. From what you posted, I agree that your daughter would benefit from medication and possibly counseling. I don't know about medications specifically and I am not a medical professional but she is old enough to communicate how the meds are affecting her so that should help in finding the correct dosage and type. Find a doctor that has expertise in this field and get her help a... More

  • Keri
    Apr 10

    I kinda giggled at this post because your not alone! My daughter is the same way in some aspects and my mother would say “look in the mirror”!! 😓😓 my daughter has grown up with adults most of her life and only kid time is at school. The kids don’t get her personality and her sense of humor. She is to smart for her own good and talks to others as she was an adult. It’s so frustrating sometimes b... More

Nail biting

Y’all I need help. My 3 year old son chews his nails to nothing and then continues to chew the tops of his fingers. His finger tips look like he drug them on pavement, they’re raw and sometimes bleed! He moved to this after chewing his wrists to the point of being bruised. He does have a sensory processing disorder and the dr has said that may be his coping mechanism but he is hurting himself a... More

  • Dani
    Feb 18

    And no he doesn’t have one, but I’ll definitely look into getting him one :)

  • Andrea
    Feb 20

    I found they have necklaces for kids who have this sensory need!!! Different ones/shapes depending on what he chews. Go online and find teething necklaces for kids.

Brynne posted in Behavior Jan 31

I have an 8 year old daughter. Who doesn’t listen well.

My daughter who is 8 has A.D.D. She is not listening to me when I need her to do something. (Like clean her room, or she can’t sleep in her sisters bed etc...) she sometimes also has outbursts when she doesn’t get her way and tends to do what she wants while being upset. I would like to have some tips and tricks for listening. Also if you have tips and tricks to calm her down. Would be greatly ... More

  • Looloo
    Feb 08

    Well from what I read it’s normal for children to not listen during that age. I went through it too. Now that my daughter is 10 she is a lot better at completing tasks. You have to first make sure they know how to do the task. Do it with them . And then also need to discipline. If they don’t want to do the chore take away their favorite thing and don’t feel bad and next time she will know you a... More

  • Elizabeth
    Feb 10

    What I do with my step son is make eye contact with him and say it slowly and calmly. As well as getting him in the kitchen with me and giving him easy praise tasks and when his hands are moving and youre calmly telling him what to do, and slipping in questions about his day, are much simpler than anything else I’ve tried.

Early steps

Hi! My son just got referred to early steps for a speech evaluation. He is 18 months now. I am just wondering what is involved with this program? Does anyone have any recommendations for a late talker before I get to my first apt in April?

  • Momof1
    Jan 30

    Gabriela, how did your apt go?

  • Gabriela
    Feb 01

    Well they said he was fine in everything else except for the talking/communication part and they are gonna sent someone to our house to teach him and help him develop his vocabulary more

Anonymous posted in Developmental Disorders Jan 25

I need reassurance and you tell me what you think??

So my in laws have been watching my LO for a couple of days and they seem to think my son has autism/some type of eating disorder. He doesn’t like eating solids, and he’s really picky with what he eats but he does love sweets 🤦‍♀️ because of his dad. (We still encourage him at home to eat solids/healthy food etc.) he loves those pouches that are like purée foods (apple sauce pouches) etc. so he... More

  • Lynn
    Feb 19

    You can also consult with a a neuropsychological clinic. They specialize in evaluating IQ, autism, spectrum, add, learning disabilities. There should be some in your area. I emailed several clinics and started conversations about my concerns about my kid, requested quotes (it’s not cheap), and they did a comprehensive IQ evaluation with her. We called it special game day. Also, if your pediatri... More

  • Jennifer
    Apr 25

    I love the in laws 101! That is exactly what you should do. In laws tend to say the meanest things. Heck, when my son was a infant, my MIL expected him to be super chubby fat. She complained on how my son didn't have baby fat and still today at 8yrs old, he's skinny. My MIL would say I'm starving my son but my husband and my gene, we tend to have skinny genes. I just nod and ... More

Therapy and ?beyond

My 3.5 year old daughter is autistic. We have been getting her ABA therapy ~20-30 hours a week in home for the last year. The ABA providers are very reputable and the therapists seem very invested in her. However, she is still essentially non verbal. She does mand for things but inconsistently. She has no negative behaviors, thankfully but even basic communication is very hard. We have evaluate... More

  • Tiffany
    Apr 15

    And as far as wanting information on things of that nature, find agony autie on Facebook and nuerodivergent rebel on Facebook.

  • Tiffany
    Apr 15

    Our first thing when it comes to understanding autism is listening to our children.z non verbal doesn’t mean they cannot communicate. They most certainly can and do. We have to listen.

Two year old not talking

My two year old son has been in ST and OT since he was about 15-16 months old. He’ll say (and sign) “more”, and “mama” (I don’t feel he associates it with me, he just says it) and “du” for done. He points to what he wants. He’ll even get something out of the pantry if he wants it and brings it to me. He attempts to wave hi and bye. Makes great eye contact. Does good in social situations. Doesn’... More

  • Ashley
    Dec 28, 2018

    My son is three and he’s talking more now but not where he should be. I contacted s.a.m.s they are in reading. They deal with speech and much more. They also get you in contact with bciu and will diagnose your child. Like if he has adhd or autism. Then they will come to your house and give him the help he needs. My son dose the same thing and he is in speech and occupational therapy and it’s he... More

  • Jenn
    Dec 28, 2018

    Thank you all so much for your input. I know I’m doing all I can with him, just anxious for answers. Thank you again!

Does every child learn different

Hello I’m a first-time mom to a two-year-old little boy. My question is this does every child two years old have a certain timeframe to learn certain things. The reason behind this is because yesterday I came home from a hard days work for his grandparents to Yell at me and say that my son is slow.My son is currently in daycare and he is one of their best children there. He knows how to count s... More

  • Birdie
    Dec 26, 2018

    Tell them that if they feel he should be in a better daycare, if they fully pay for it then you’ll switch. They haven’t had a child in daycare in a while so I’m guessing they don’t know how expensive a “state of the art” daycare costs. Every child develops in they’re own time. As long as he understands & responds accordingly he’ll talk more when he’s ready. I’ve run into those parents who’... More

  • Elissa
    Dec 26, 2018

    Your son sounds fine to me! As everyone else is saying, sometimes bilingual/trilingual children are a little slower to actually speak. But most understand the languages even if they aren’t speaking. And also, a lot of time boys are just slower to speak. Ask your in laws if they understand three languages like he does lol

Shaking head “no”

My 9m old shakes her head “no” anytime you ask her any type of question. At first I thought it was her way of showing excitement but now I’ve noticed she does it pretty much the entire time she eats in her high chair. Has anyone else experienced this? Should I be worried if there is something neurologically wrong?

Anonymous posted in Behavior Dec 19, 2018

Hitting and Saying No!!

Help!! My 3 year old says No and attempts to hit her teachers and also the table when they try to redirect her? How can I get her to stop before her behavior gets worse? She's developmentally and speech delay so I'm not sure if she knows the concept of time out or taking things away. It's beginning to feel frustrating.

What are some symptoms of autism at an early age?

I recently took my 2 year old to a check up. They make me answer this questionnaire on how the baby is developing, and the doctor said some of his behavior like not starting conversations and not displaying interpersonal skills could be signs of autism and he recommended an early intervention program for him. I would like to hear from other parents who have gotten a similar diagnosis or of pare... More

  • Lynn
    Dec 28, 2018

    Social interaction and lots of reading and talking (sports casting) is really important even if he is only watching. I’d recommend age appropriate adult participation classes. Parent participation preschool, play dates (find a play date group), music together, gymnastics, whatever you can find and afford. Your state should have an early prevention program and some adult school/community schools... More

Help please

What r some things u do with ur special needs kids when they r still nappers and how do u get them on a routine my daughter is 3 and I can’t seem to get her to do anything haha I’m a stay at home mom and have all the time in the world but feel like I’m getting no where anyone else feel that way

  • Rachel
    Dec 13, 2018

    We arnt sure as of what yet we think Autism I have the pec system but I am not on a routine my self so it makes it hard

  • Jennifer
    Dec 13, 2018

    Yes get yourself on one the incorporate the kids into that! Always best to be organized yourself best of luck

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