Developmental Disorders

Support and advice for parents of children with all kinds of medically complex situations including ADHD, autism, Down syndrome, physical handicaps, and learning disabilities.

Potential ADHD in 3.8 yr old girl

So I’m worried after my preschooler’s parent teacher conference. They said she resists fine motor and greatly struggles with writing her name. They said she often needs redirection in class, has physical boundary issues with met classmates, putting a foot on a kid gently in circle time and tuning out completely when not interested. Then in roof play she follows along initially with play but whe... More

  • K
    42m ago

    I am an elementary teacher and have a sweet (most of the time) 4 year old boy in a pre-k 3 program. He began the school year with an IEP from the district bc he was in Early Intervention for his speech delay. We could have been in the exact same meeting!!! My son turned 4 in February, so they are pretty close in age. It was like I was hit over the head. If he was displaying these behaviors why ... More

Anonymous posted in Child's Health Mar 07

ADHD pre-teen

Well, this is my first post to Winnie. Not sure what to expect but here it goes. I have a 12-yr old daughter who will be entering 7th grade next year. I am utterly terrified. She is bright, funny, sassy and well...she’s all kinds of wonderful but unfortunately she has lots of challenges too. She is severely ADHD and hyperactive beyond belief. This has impacted her grades for years and she rarel... More

  • Diane
    Mar 08

    Trust your gut. From what you posted, I agree that your daughter would benefit from medication and possibly counseling. I don't know about medications specifically and I am not a medical professional but she is old enough to communicate how the meds are affecting her so that should help in finding the correct dosage and type. Find a doctor that has expertise in this field and get her help a... More

Nail biting

Y’all I need help. My 3 year old son chews his nails to nothing and then continues to chew the tops of his fingers. His finger tips look like he drug them on pavement, they’re raw and sometimes bleed! He moved to this after chewing his wrists to the point of being bruised. He does have a sensory processing disorder and the dr has said that may be his coping mechanism but he is hurting himself a... More

  • Dani
    Feb 18

    And no he doesn’t have one, but I’ll definitely look into getting him one :)

  • Andrea
    Feb 20

    I found they have necklaces for kids who have this sensory need!!! Different ones/shapes depending on what he chews. Go online and find teething necklaces for kids.

Brynne posted in Behavior Jan 31

I have an 8 year old daughter. Who doesn’t listen well.

My daughter who is 8 has A.D.D. She is not listening to me when I need her to do something. (Like clean her room, or she can’t sleep in her sisters bed etc...) she sometimes also has outbursts when she doesn’t get her way and tends to do what she wants while being upset. I would like to have some tips and tricks for listening. Also if you have tips and tricks to calm her down. Would be greatly ... More

  • Looloo
    Feb 08

    Well from what I read it’s normal for children to not listen during that age. I went through it too. Now that my daughter is 10 she is a lot better at completing tasks. You have to first make sure they know how to do the task. Do it with them . And then also need to discipline. If they don’t want to do the chore take away their favorite thing and don’t feel bad and next time she will know you a... More

  • Elizabeth
    Feb 10

    What I do with my step son is make eye contact with him and say it slowly and calmly. As well as getting him in the kitchen with me and giving him easy praise tasks and when his hands are moving and youre calmly telling him what to do, and slipping in questions about his day, are much simpler than anything else I’ve tried.

Early steps

Hi! My son just got referred to early steps for a speech evaluation. He is 18 months now. I am just wondering what is involved with this program? Does anyone have any recommendations for a late talker before I get to my first apt in April?

  • Momof1
    Jan 30

    Gabriela, how did your apt go?

  • Gabriela
    Feb 01

    Well they said he was fine in everything else except for the talking/communication part and they are gonna sent someone to our house to teach him and help him develop his vocabulary more

Anonymous posted in Developmental Disorders Jan 25

I need reassurance and you tell me what you think??

So my in laws have been watching my LO for a couple of days and they seem to think my son has autism/some type of eating disorder. He doesn’t like eating solids, and he’s really picky with what he eats but he does love sweets 🤦‍♀️ because of his dad. (We still encourage him at home to eat solids/healthy food etc.) he loves those pouches that are like purée foods (apple sauce pouches) etc. so he... More

  • Julie
    Feb 19

    Unless your in laws are your child’s pediatrician, they simply have no idea what they’re talking about. If you take your child to their regular dr visits and discuss concerns with them, their pediatrician should be able to evaluate and quickly diagnose or refer you. Just discuss with your pediatrician and tell the in laws to shut up or not expect any alone time with your child anymore. BTW wha... More

  • Lynn
    Feb 19

    You can also consult with a a neuropsychological clinic. They specialize in evaluating IQ, autism, spectrum, add, learning disabilities. There should be some in your area. I emailed several clinics and started conversations about my concerns about my kid, requested quotes (it’s not cheap), and they did a comprehensive IQ evaluation with her. We called it special game day. Also, if your pediatri... More

Anonymous posted in Developmental Disorders Dec 28

Therapy and ?beyond

My 3.5 year old daughter is autistic. We have been getting her ABA therapy ~20-30 hours a week in home for the last year. The ABA providers are very reputable and the therapists seem very invested in her. However, she is still essentially non verbal. She does mand for things but inconsistently. She has no negative behaviors, thankfully but even basic communication is very hard. We have evaluate... More

  • Anonymous
    Jan 11

    ABA is not the gold standard. It simply teaches kids who can’t do certain things how to fake it. If eye contact is difficult for your daughter ABA will make it manageable, but it’s never going to be something that she will want to do. Teaching the script of, “I am fine, how are you?” Doesn’t actually make her interested in the answer. It’s a script and it serves no purpose. I suggest you try ... More

  • Venisa
    Jan 24

    We changed my daughter's diet, give heavy metal detox baths, acupuncture and massage therapy. In the year since diagnosis, she is at her age range of 3.6yo for talking and 4-5yo for cognitive function. I also work with her constantly. We don't have ABA but we have speech twice a week, OT 2-3x a month, and music therapy every week. Look for Autism webinars as those are insightful as well.

Two year old not talking

My two year old son has been in ST and OT since he was about 15-16 months old. He’ll say (and sign) “more”, and “mama” (I don’t feel he associates it with me, he just says it) and “du” for done. He points to what he wants. He’ll even get something out of the pantry if he wants it and brings it to me. He attempts to wave hi and bye. Makes great eye contact. Does good in social situations. Doesn’... More

  • Ashley
    Dec 28

    My son is three and he’s talking more now but not where he should be. I contacted s.a.m.s they are in reading. They deal with speech and much more. They also get you in contact with bciu and will diagnose your child. Like if he has adhd or autism. Then they will come to your house and give him the help he needs. My son dose the same thing and he is in speech and occupational therapy and it’s he... More

  • Jenn
    Dec 28

    Thank you all so much for your input. I know I’m doing all I can with him, just anxious for answers. Thank you again!

Anonymous posted in Developmental Disorders Dec 24

Does every child learn different

Hello I’m a first-time mom to a two-year-old little boy. My question is this does every child two years old have a certain timeframe to learn certain things. The reason behind this is because yesterday I came home from a hard days work for his grandparents to Yell at me and say that my son is slow.My son is currently in daycare and he is one of their best children there. He knows how to count s... More

  • Birdie
    Dec 26

    Tell them that if they feel he should be in a better daycare, if they fully pay for it then you’ll switch. They haven’t had a child in daycare in a while so I’m guessing they don’t know how expensive a “state of the art” daycare costs. Every child develops in they’re own time. As long as he understands & responds accordingly he’ll talk more when he’s ready. I’ve run into those parents who’... More

  • Elissa
    Dec 26

    Your son sounds fine to me! As everyone else is saying, sometimes bilingual/trilingual children are a little slower to actually speak. But most understand the languages even if they aren’t speaking. And also, a lot of time boys are just slower to speak. Ask your in laws if they understand three languages like he does lol

Shaking head “no”

My 9m old shakes her head “no” anytime you ask her any type of question. At first I thought it was her way of showing excitement but now I’ve noticed she does it pretty much the entire time she eats in her high chair. Has anyone else experienced this? Should I be worried if there is something neurologically wrong?

Anonymous posted in Behavior Dec 19, 2018

Hitting and Saying No!!

Help!! My 3 year old says No and attempts to hit her teachers and also the table when they try to redirect her? How can I get her to stop before her behavior gets worse? She's developmentally and speech delay so I'm not sure if she knows the concept of time out or taking things away. It's beginning to feel frustrating.

What are some symptoms of autism at an early age?

I recently took my 2 year old to a check up. They make me answer this questionnaire on how the baby is developing, and the doctor said some of his behavior like not starting conversations and not displaying interpersonal skills could be signs of autism and he recommended an early intervention program for him. I would like to hear from other parents who have gotten a similar diagnosis or of pare... More

  • Lynn
    Dec 28

    Social interaction and lots of reading and talking (sports casting) is really important even if he is only watching. I’d recommend age appropriate adult participation classes. Parent participation preschool, play dates (find a play date group), music together, gymnastics, whatever you can find and afford. Your state should have an early prevention program and some adult school/community schools... More

Help please

What r some things u do with ur special needs kids when they r still nappers and how do u get them on a routine my daughter is 3 and I can’t seem to get her to do anything haha I’m a stay at home mom and have all the time in the world but feel like I’m getting no where anyone else feel that way

  • Rachel
    Dec 13, 2018

    We arnt sure as of what yet we think Autism I have the pec system but I am not on a routine my self so it makes it hard

  • Jennifer
    Dec 13, 2018

    Yes get yourself on one the incorporate the kids into that! Always best to be organized yourself best of luck

Question¿

So, I have a 2 year old girl that has been diagnosed with a form of hyperactive disorder / hyperactive autism. We were told she won’t be able to speak, but she is very smart and has already started to learn sign language for the past 3 weeks. I work a full time job. And the wife is a stay at home mom. Reason, is because we can’t afford day care and if she starts working insurance and daycare se... More

  • Erika
    Dec 09, 2018

    My 19 month old son was diagnosed with very mild autism on wednesday but we knew he was becauze of the common signs. My pediatritian referred me to Early childhood intervention ECI. Is the best because they come to your house and evaluate your kid and give them therapy. I dont know what kind of insurance you have. If you cant afford it look an youtube for activities and toys to help her devel... More

  • Luz
    Dec 12, 2018

    Socialization is crucial. I have a 13 year old girl with Autism. She did not speak until 5. I cannot keep her quiet now. TEIS would be a great support for you

Anonymous posted in Behavior Nov 30, 2018

2.7 month old boy, delayed in speech

my toddler had surgery in August and today his speech teacher informed me that he is not progressing fast enough. They are recommending for him to go to a pediatrician neurologist and getting ABA services. at home he is a handful he screams when he wants things hits alot. I have a 6 month old and he hits her alot. he says minimum words. i don't know what to do this makes me scared and ... More

  • Vanessa
    Dec 02, 2018

    If ABA services are recommended, it may be your son is autistic. My son was diagnosed with autism December 2016 at 3 years old. ABA has helped him with his behavior issues (hitting and biting), but it was has also been really helpful with his speech. He goes to speech therapy weekly, but he spends each day working with an ABA therapist. I hope you are able to figure out how to help your son, ... More

  • Elissa
    Dec 07, 2018

    I see that you’re getting him tested ASAP. My boyfriend’s ex wouldn’t get help for their son (bf was in the military) and now he’s 5.5 and still extremely hard to understand. So when his dad finally took him to a speech therapist, he was 3.5 and not saying anything at all. It wasn’t fair to him at all... he gets so frustrated when we don’t understand him and is very shy when meeting people beca... More

Question regarding ultrasound pic posted within post

So I have 4 children (2 of each)and one on the way. My boys both have disabilities and they are very difficult to handle at times. My youngest son is 3.5 yrs old and has ADHD, sensory issues and has a violent temper. He’s very aggressive at times and he receives a lot of services and help (he’s doing better than prior to services). Anyways I saw my ob and he is about to retire he’s about 84 yea... More

  • Melanie
    Dec 16, 2018

    I’m not an ultrasound tech, but my friend is. She said she doesn’t see anything boy related in this picture just a belly, brain and heart. We both agreed it’s a terrible scan neither of us see the profile. Good luck with the rest of your pregnancy!

  • Anonymous
    Dec 17, 2018

    UPDATE The ob was wrong. Just received confirmation from genetics 🧬 it’s a GIRL. THANKS Mamas for all your replies.

Therapy for my Developmentally Delayed Child

Hi Familes! So my child got assessed through Public School System. She is 3. They say she's developmentally delayed and can get free therapies through the Public School sector. Anyone have any experience with private services. I am aware that it would cost money but I wanna weigh all my options for her..Which one is better private therapy or therapy through public school system. Anyone know??

  • Heidi
    Nov 26, 2018

    My son went through early intervention and they were phenomenal! His therapist worked for a private company that works with the county for services. The care is just as good as private! I would with early intervention at my job at a learning center and they are all great therapists!

  • Jennifer
    Nov 26, 2018

    My 10 year old is non verbal and has had a few therapies over the years. Speech and OT. I think a lot of this answer depends on your school district. With private therapy you are looking at missing school possibly. We did speech therapy private for awhile but he ended up missing a lot of school and the two therapist private and at school weren’t working well together so we dropped the private m... More

Traveling with autistic son

We will be traveling for thanksgiving with our 4 year autistic child. It will be his first time on an airplane. Do you have any tips or advice? Any cool apps for the iPad or cool games that he would like? Anything is helpful. Thanks in advance!

  • Anonymous
    Nov 20, 2018

    Thank you so much for your responses!! 💗

  • Iris
    Feb 11

    There’s an app on iPhone called “Autism Apps” it sorts tons of apps by categories.

Misdiagnosed

For all my mother with children with special needs do not let the first opinion determine your child behavior. I have been told my son is autistic at 3 (July 2018) but he went for another evaluation at his school and they see more of a ADHA, mood disorder and behavioral disability. I believe by the age of 6 we'll get a better understanding of what are child condition are. Right now my son ... More

  • Joanna
    Nov 16, 2018

    I think all second born kids will feel a little left out. Once we settled into our school schedule, OT and ABA sessions, I found time to spend with my 16 month old. I don't want to overwhelm you but look into ABA therapy. We didn't start ABA until 6 months after diagnosis...I was overwhelmed too with the diagnosis, new school and new baby. But now someone comes to our home 8 hours a w... More

  • Ivania
    Nov 20, 2018

    Autism and ADHD have A LOT of symptoms in common. Is not rare for autistic to have both diagnosis. You will see better in two years. Your son is taking the same therapies than my son, and my son is autistic. Also, autism is NOT the same in every individual. Every single autistic is different and that is why school think he can just have adhd.

Load More