Hi All! My 7-month little girl (4-months corrected) has been tune-fed since birth. In the past she has taken up to 50% of her feeds by bottle but after bouts of reflux and Head/chest colds she now rejects taking the bottle/boob or any flow of liquid (breastmilk/neosure formula) by mouth. For months I’ve been to doctors and therapists but none have established ongoing therapy yet. So, I’m gettin... More
So my 6 yr olds neurologist did an mri and blood work because hes been pretty delayed for awhile in school work and cant hold a pencil or scissors right well the mri shows he has an insult in his frontal lobe which she said is eith from a mini stroke when he was in my stimach or a scissor disorder and the blood work shows he is missing 50 kb of his 14th chromosome and she said the is linked to... More
My three year old son is moderately hearing impaired in both ears and we’ll be going for our hearing aid evaluation tomorrow. He is non-verbal (he makes sounds, just no words) and I’m nervous about trying to figure out a way to get some sort of feedback from him about the fit/hearing sounds, etc when it comes time to try them on. Are there any other parents of kids with hearing impairments an... More
The plastic surgeon hesitated to diagnose my 7 month old with it but says it’s the closest thing to what’s going on with him, was looking to see if anyone has kids with it and how the affected limb(s) progressed. Also if anyone had multiples during their pregnancy be the assumed reason for the injury. The running theory is he got crammed in my hips and it cut off the blood supply to his arm.
Preschool help, parents with little ones that have sensory processing issues, how did you find a preschool that worked. Currently my son is 3 1/2, we have an awesome and patient nanny and we’re looking to send our son to preschool only a couple of days for just a few hours just for social time which his occupational therapist whose helping us with his sensory needs thinks would be good for him ... More
I am looking for suggestions on a backpack that is big enough to carry my son’s PECS book when we leave the house. He is mostly non-verbal and relies on it to communicate his needs. We have a strap attached to it but it’s not realistic to expect a 3y/o to hold onto it while we are out. He does not like it on his shoulder or cross body style. He has a couple of backpacks from the SkipHop col... More
The Spring 2018 Disability Resource Hub Guide – Tampa Bay Publication - is available online now at: http://www.magazinevolume.com/30488BFt/#/1/ The Disability Resource Hub Guide is a free publication and website featuring a directory of medical, educational, and community providers. We look forward to providing accessible and up-to-date information to all of our families within the Tampa Bay A... More
This really resonated with me as the mom of a special needs kid http://www.scarymommy.com/moms-children-special-needs-letter/