Differently-Abled Children

Parents of deaf children, blind children, children in wheelchairs and children of all abilities are all welcome here in this safe space to share and get support.

Any tools/tricks to help tube-fed baby increase liquid volume by mouth or move to purées?

Hi All! My 7-month little girl (4-months corrected) has been tune-fed since birth. In the past she has taken up to 50% of her feeds by bottle but after bouts of reflux and Head/chest colds she now rejects taking the bottle/boob or any flow of liquid (breastmilk/neosure formula) by mouth. For months I’ve been to doctors and therapists but none have established ongoing therapy yet. So, I’m gettin... More

  • Anonymous
    Jan 09

    Hi maisha ! My daughter is a tube fed baby she’s 19 months and got it when she was 6 months . If what your doing isn’t working you should definitely go to her pedi and URGE them to put a referral in for Golden Gate Regional center or for feeding therapy . Feeding by mouth is very tricky and can be dangerous is not done properly . So since all else failed just stay on them about the referral .

  • Anonymous
    Jan 09

    In addition ^ Try dr Browns bottles with new born flow . Worked wonders while my baby waited for therapy

Hi im trying to get some answers about some results

So my 6 yr olds neurologist did an mri and blood work because hes been pretty delayed for awhile in school work and cant hold a pencil or scissors right well the mri shows he has an insult in his frontal lobe which she said is eith from a mini stroke when he was in my stimach or a scissor disorder and the blood work shows he is missing 50 kb of his 14th chromosome and she said the is linked to... More

  • Kay
    Nov 14

    You should get a second opinion. It could be something else entirely. My son has autism. His first doctor told me that he would never talk , he would never learn anything,and he would always be dependent on my husband and I. That’s when he was around 1/2 - two years old. He’s six now and everything that his first doctor said was completely wrong. I know it’s not the same as your situation but i... More

  • Kay
    Nov 14

    Also check into SPD and autism. My son still has trouble with his hands. He takes occupational therapy and speech therapy also

Toddler with hearing aids?

My three year old son is moderately hearing impaired in both ears and we’ll be going for our hearing aid evaluation tomorrow. He is non-verbal (he makes sounds, just no words) and I’m nervous about trying to figure out a way to get some sort of feedback from him about the fit/hearing sounds, etc when it comes time to try them on. Are there any other parents of kids with hearing impairments an... More

How to get my son to enjoy food

My son is 20 months and have trisomy21. He only eats purees but sometimes he wont eat at all. What are some ways to get him to eat food. Maybe some tasty recipes. Anything will help

  • Jessica
    Oct 04, 2018

    I just copy those recipes from the fun store brand to change it up a bit. (Adding spices, colors, etc)

  • Stephanie
    Oct 07, 2018

    Since he’s sensitive to texture how about starting slow with cereal like things: cooked quinoa (high in protein) mixed with peanut butter and banana. Scrambled eggs with tasty cheese? Smoothie with kale, frozen strawberries, yogurt, almond milk. Baked potato with sour cream and cheddar cheese. Does it help if you’re eating the same thing? I know my guy always wants what I’m eating even if it’... More

Swimming with ASD

Any parents with kids on the spectrum experience cognitive and/or behavioral benefits after enrolling in swimming classes? Please share observations!

Any toddler moms with a G-Tube baby, due to underweight?

  • Corissa
    Sep 09, 2018

    Not toddler but my babe is 9 months with a gtube

  • Shell
    Sep 30, 2018

    My daughter was born premature and has had a gtube since a week after she was born, she is 10 now and still has it

Neonatal compartment syndrome

The plastic surgeon hesitated to diagnose my 7 month old with it but says it’s the closest thing to what’s going on with him, was looking to see if anyone has kids with it and how the affected limb(s) progressed. Also if anyone had multiples during their pregnancy be the assumed reason for the injury. The running theory is he got crammed in my hips and it cut off the blood supply to his arm.

Sensory processing disorder

Preschool help, parents with little ones that have sensory processing issues, how did you find a preschool that worked. Currently my son is 3 1/2, we have an awesome and patient nanny and we’re looking to send our son to preschool only a couple of days for just a few hours just for social time which his occupational therapist whose helping us with his sensory needs thinks would be good for him ... More

PECS book

I am looking for suggestions on a backpack that is big enough to carry my son’s PECS book when we leave the house. He is mostly non-verbal and relies on it to communicate his needs. We have a strap attached to it but it’s not realistic to expect a 3y/o to hold onto it while we are out. He does not like it on his shoulder or cross body style. He has a couple of backpacks from the SkipHop col... More

Anyone have a baby with bilateral hearing aides? I’ve tried the strings, a ear band and pilot cap.., please let me know at what age pulling them out stops?!

  • Katelyn
    Apr 05, 2018

    My daughter is 9 months and has bilateral hearing aids. I just use the head bands that are sold on Etsy to keep them in and together. She still pulls at them but it's the best solution for now for her.

Any parents with disabled kids or kid? I have a beautiful 4 year old she's legally blind. Just want to meet someone that shares the same experiences as me.

  • Jess
    Mar 18, 2018

    Our daughter is 9 and is also legally blind❤️

The Spring 2018 Disability Resource Hub Guide – Tampa Bay Publication - is available online now at: http://www.magazinevolume.com/30488BFt/#/1/ The Disability Resource Hub Guide is a free publication and website featuring a directory of medical, educational, and community providers. We look forward to providing accessible and up-to-date information to all of our families within the Tampa Bay A... More

My 2m old has been diagnosed with high frequency hearing loss and will be needing at least one hearing aid. Any advice or experience is appreciated.

  • Yani
    Oct 15, 2017

    The special education department in school district will also help your baby. Help is everywhere if you ask. Don't worry too much.

  • Rachel
    Nov 12, 2017

    Late . But my daughter was diagnosed with unilateral hearing loss at newborn screening . My advice is to stick with it , even if the little one doesnt take to it well initially . (Hearing aid) . I didnt pursue those things , cause I was young snd ignorant to it , so when she started school & needed to wear them , we had a lot of fuss w. Her pulling it out . Take advantage of the speech ther... More

Anonymous posted in Child's Health Sep 07, 2017

Does anyone have a child with clubfoot or limb difference?

  • Lexus
    Dec 14, 2017

    My daughter was born missing her right arm at the elbow, right leg at the knee, and most all 0arts of her left hand.

  • Lexus
    Dec 14, 2017
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