Support, advice, and resources for parents of babies that were born prematurely.

Anonymous posted in Postpartum Recovery Mar 13, 2019

What to bring to someone in hospital on bed rest/for a preemie baby?

A good friend has been hospitalized with severe pregnancy complications far ahead of her due date and will be there for weeks. She’ll likely be induced soon as well. I’ll be visiting her this weekend, and wondering (especially if anyone has been there) what I should bring for her to make her stay more comfortable (maybe comfy PJs/food?), and also for the baby (maybe preemie sized clothes)? An... More

Speech development

My almost-21 month old says about 20 “real” words. A couple more if you count animal sounds, which I’m not. He was born 2 months early so there’s that, but I know preemies are supposed to be mainly caught up by the time they’re 2. I’ve been seeing so much come up all over the place about early intervention and I’m wondering if that would be something to look into. My preschooler was always ahea... More

  • Angelica
    Feb 15, 2019

    Definitely bring it up with your Pediatrician if you are concerned. Is he doing really well in other areas of developement? My son was slower to pick up on talking because he was more interested in learning physical skills. Baby sign language helped him communicate better until he started using his words.

  • Kheira
    May 22, 2019

    You should check out a speech therapist. We see one for feeding as well.

Help me out mommas-- is your LO on probiotics?

Have any of you mamas given ur LO probiotics? My babygirl is going on 6 wks & was 6 wks early (so she spent 3 wks in NICU) so they put her on neosure formula with iron. At the hospital the whole 3 wks she didnt have barely any gas but was on the readymade neosure formula but since shes been home (almost 3 wks) i had to get the powdered formula with my WIC which has been SUPER rough on her t... More

  • Jean
    Dec 17, 2018

    We use the Gerber probiotic drops occasionally (mostly when he is on antibiotics). When he was younger we found the gas drops made him worse and drowsy. Bicycle legs and try windi by fridababy. Our guy was on the neosure for a little while too before we switched to total comfort. It does take them a little while to adjust. The neosure did help him put on some much needed weight. Hang in ther... More

  • Kaitlyn
    Apr 13, 2019

    I’m having the same problem! LO is 9 weeks 5 wks adjusted. The Neosure really does a number on her and made her an extremely fussy baby. I’ve spoken to my pediatrician and she assures me it will pass but it’s so difficult in the meantime. I’ve given her Gerber Soothe drops, gas drops, gripe water, Wiindi, warms showers (in between baths) and it seems like a combo of things only works occasiona... More

Any parents on here have a preemie that is current on neosure formula ?

  • Allison
    Apr 29, 2019

    Yes - I am on neosure. My lil one was 4 weeks early (4/17/19) and was 5 lbs 16 oz when I had my c section but dropped to 5 lbs 9 oz when I left NICU last week. They had him on Neosure in NICU and we have continued it per dr orders. It’s expensive and kinda hard to find, but oh well

  • Allison
    Apr 29, 2019

    Mine is having horrible gas and hiccups as well!!! Trying to burp him now. He hiccups EVERY TIME he eats

NICU mama

I had my second baby in the same year that i had my first born. My son decided to come really early I had him at 23 weeks. He is in the NICU and I’m praying he makes it out alive. He is truly a fighter tho and I truly admire my son for being such a strong guy during the hardest part of his life right now so mama also has to be strong for my little guy. Anyone else in this situation as well ?

  • Priscilla
    Nov 24, 2018

    Even though my younger son wasn’t born nearly as early, I can empathize with you as a fellow preemie/NICU mom. Yes, it will likely be one of the toughest experiences you will ever have in life, and most likely a crazy, emotional rollercoaster where things change by the hour. Plenty of tears and disappointment but also encouragement and hope. Remember to take care of yourself, whatever that migh... More

  • Alysha
    Nov 25, 2018

    My 27 week niece is turning 10 years old this year! She is a little on the small side but beyond that just fine. Yes there were a hard first 3 years. I live with my brother and took care of my niece and nephew for a while. at a little over a year she was Markef not to thrive and was on oxygen and had to have a Mickey button installed. So I was side tube feeding my niece. but days kept going fo... More

Premature development

I have a 14month old who was born at 35weeks and development is delayed a month a a half. She is almost 15 months and either blatantly ignores me or does not understand commands like spit it out, give it to me, come here, or even responding to her name being called. If there’s something she wants or it benefits her then she’ll respond greatly which makes me think she understands, but other than... More

  • Anonymous
    Oct 06, 2018

    I will look into it, thank you guys!

  • Anonymous
    Nov 15, 2019

    I was wondering how your little is doing now? I'm having the same issue with mine.

I have a 23 month old preemie and I can’t seem to wean him from the breast. Any advice??

  • becky
    Oct 03, 2018

    My son is 28 months and still breastfeeding at naps. The rest of the feeding we started weaning from one at a time. Starting with the daytime when he was easier to occupy. At night we weaned the bedt im me one first by giving him a glass of milk instead. He eventually weaned himself of the rest of the night ones. Hang in there. Eventually they stop on their own:)

  • April
    Oct 03, 2018

    Legally speaking, jobs have to give you certain intervals of time to pump or breastfeed. If you’re having issues pumping, try upping your water intake. That helped me a lot. I went from half a gallon a day to sometimes up to 2 gals.

Bloody stool

M son he was born 2.5 months early. He is 3 months old now. He was on breast milk in the beginning with no issues and now he has bloody stool. The doctor tested him for milk and soy allergy and it came back negative. Also he does have a lip tie but dentist said it’s not bad and won’t operate on it. So my doctor has him on hypoallergenic formula but I want him back on breast milk. Any one els... More

  • anonymous mom
    Sep 06, 2018

    Good luck to you!!! If it continues to be an issue or if you want a second opinion, you can ask to see a pediatric gastroenterologist. If her blood hadn’t cleared in 2 weeks, that was our next step.

  • Linz
    Sep 06, 2018

    How did he test him? My baby have had the same thing happen to him at that age, I asked if he can be tested, but both the pediatrician and the GI said there no test for babies this small, and blood testa will not be accurate. But they both agreed I should continue with breastmilk with trying to cut possible allergens, I started with all dairy, then I had to cut out eggs and soy too. They said i... More

Anonymous posted in Preemies Aug 24, 2018

Son is nearly 5 months old and still needs swaddled at night!

He was premature a month, but the timing still has me concerned. Am I late at getting him used to self soothing? What do I do?

  • Tiffany
    Sep 03, 2018

    Zipadee Zip was a life saver for me.

  • Anonymous
    Sep 03, 2018

    Thanks everyone!

How can I help my daughter to crawl. She hates being on the floor, cries until she’s picked up

11 months now and 8 months adjusted. She prefers to stand but has no balance when standing

  • Summer
    Aug 25, 2018

    I have the same problem with my 9 month old. He hates tummy time and doesn’t want to crawl so I’m not forcing it. Instead I got him a standing activity table and we’re working on standing. He love to pull himself up.

  • Luz Marie
    Sep 05, 2018

    Used to have that same problem with my daughter. She wouldn’t last 2 minutes before have a breakdown. We started doing lots of stuff on the floor with her that didn’t necessarily had to do with crawling or tummy time. For example I started to sit on the floor with her to read, gave her snacks, for singing (pat-a-cake etc); I would lay down next to her just like to reassure her that she was “saf... More

Anonymous posted in Breastfeeding Aug 13, 2018

Delivery at 29 weeks

My cousin had an emergency c-section at 29 weeks, any advice/tips on having such a little baby and an extended NICU stay?

  • Katelyn
    Aug 15, 2018

    My baby was in the NICU for a month. Others have said this, but making sure your cousin has food at home for easy quick meals is a huge help for a NICU mom. You are constantly on the go between home and the hospital and also having to make time to pump. If she is pumping, I would suggest getting her some premier protein shakes. They were so easy for the mornings and you need a lot of protein wh... More

  • Kheira
    May 22, 2019

    It’s a long journey. Don’t let her get isolated from the outside world.

Anonymous posted in Bottle Feeding Jul 09, 2018

Am I overfeeding my baby?

My son is 3 months old and was born a month premature. I’ve been trying to keep up with his appetite, but it seems to keep increasing! He’s already up to 36oz/day. He sleeps for about 6 hours at night and takes multiple naps everyday. Is this normal for a preemie?

  • Elle
    Jul 10, 2018

    I can't speak at all to preemies (that's probably a more appropriate Q for a pediatrician), but 36oz/day is totally normal and healthy for that age range. Our 3 month old sleeps 11 hrs (undisturbed) and takes around 4 short naps (30-45min) during the day. She eats 5 times during the day, each 6-7oz. Our pediatrician's feed guidance chart actually suggests the "average baby&q... More

Have you all heard about Mother’s Milk Bank? I recently came across this place and found out that they helps out babies that are in the NICU. Basically, they are looking for mothers who have extra milk and willing to donate for premature babies. Please check out their website and let other mothers know about this.

How early did you deliver and your baby not have to have a long stay in the NICU?

I'm 31 weeks with preeclampsia and the doctors have warned me that they might have to deliver at any time going forward. I was induced with my daughter at 37 weeks due to preeclampsia and she was 7lbs3oz and perfect. I'm so nervous that this time will be different.

Does anyone have a baby with a trach?

My son just turned one and was a micro preemie. I was just wondering if anyone else has a child with a tracheotomy? It’s really hard for him to even attempt to crawl cause of all the machines cause he can’t sprint. Anyone else going through this?

  • Jordyn
    Jun 12, 2018

    I try, but due to all the major surgeries he pukes if he’s doing to much. Our physical therapists are working with him every few weeks and teaching me stuff. Hopefully he can sit up soon and walk next year. He’s working hard and doing great. We just got the new trach (flex 10) I’m super excited!

  • Jordyn
    Jun 12, 2018

    Thank u!

Does anyone have twins and/or preemies and when did they start to sit on their own? My girls a 8.5m and they show no real desire to sit. My bigger girl is just over 17lbs and my little one is just over 15lbs. Is it just their size? I mean, we are super active with them.

  • Katelyn
    Apr 30, 2018

    My LO wasn't born too prematurely but had a difficult birth with some time in the NICU. She started sitting on her own around 6 months. If they aren't showing any motivation I would see if physical therapy could help. My LO has been going since birth and it really helps. Otherwise my only recommendation would be to encourage it by playing more in sitting positions and teaching them how... More

  • Ashley
    May 30, 2018

    I have twins born at 32 weeks. They started sitting for more than 1 min at a time around 7 months, 5 months adjusted. My daughter was better at it quicker than my son. They rarely go from laying to sitting on their own

Anonymous posted in Preemies Mar 29, 2018

Any advice on getting a 20 month old to go to sleep on his own? BACK STORY- He was a preemie. Born 3 months premature. Spent 2 months in Nicu. After coming home he slept mostly in a rocker or his swing (he had acid reflux and couldn’t sleep on his back) when he got much bigger we started co sleeping. He’s over that. Once he’s asleep he will sleep all night. We finally got him off the bottle... More

  • Rachel
    Apr 23, 2018

    I heard a few moms swear by the sound machines like at walmart. I have a cosleeper so I can only go on what ive heard others say.

New mom to a preemie. Any preemie moms here?

  • Corissa
    Apr 27, 2018

    25+6 twins here just got out of nicu after 155 days. Both born at 1lb 10oz.

  • Morgan
    Sep 14, 2018

    I am! Son born at 31 weeks

Has anyone tried either au pairs vs. nannies? I have a preemie baby and am not interested in taking him to daycare for at least the corrected age of 6 months. Any advice?

  • Mrs. HHH
    Jan 13, 2018

    Also I’d like to add to Caroline that I made enough money last year to pay for Xmas presents just by selling stuff around the house on FB marketplace, Let Go, Nextdoor, Craigslist and eBay

  • Caroline
    Jan 13, 2018

    Thank you so much Erin!

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