Special Needs Children

Every child is unique and exceptional in their own way — and some need exceptional care and nurturing to thrive.

Ask questions and share support with parents raising children who have special needs, including autism, developmental delays, physical limitations and more.

6month old has chronic hives for past two days

Yesterday my 6 month old woke up with hives on her arm that went away and came back into her thighs and went away to come back on her hands back etc. I already was taking her for her wellness exam and shots. The only new food introduced was carrots and the day of the hives she did not have any. Two days prior she did. The doctor told me to give her Benadryl and hold off on carrots and reintrodu... More

  • Andrea
    Yesterday

    I’m sure you’ve thought of this, but just in case - have you recently started using a different kind of soap, lotion, shampoo, or laundry detergent for either you or the baby?

  • Dana
    Yesterday

    Andrea I have thought of that also considered what I ate. Didn’t switch anything or eat anything out of my norm. I’ve been reading that sometimes babies get hives went having a virus. Although she doesn’t show signs of a virus I do breastfeed and I know your milk changes to help them when they are sick. Maybe it’s the only sign of illness? She did have a fever tonight but she also got shots yes... More

Lactose Intolerant 1yr old

Hey guys do you have any advice on what to do to help your lactose intolerant baby get all the protein and calcium they need? Right now he's drinking almond milk which has some added calcium and protein but not nearly as much as whole milk. And how much milk should my baby have a day if it's almond milk instead of whole milk?

  • JJ
    Jun 14

    Dairy, legumes, egg, tree nuts, soy.

  • Mrs. K
    Jun 14

    We use canned red salmon to make patties all the time. Lots of protein, calcium and dha... make sure you mash the bones really well. Also calcium fortified orange and apple juices are good for some variety. I watered down the orange juice to start.

Alimentum

My baby has had to be on alimentum for some time now due to a milk allergy. Does anyone know of a more affordable alternative? Or has anyone also had their baby on this for the same reason then switched before baby was a year old?

  • Liza M.
    Jun 13

    Jessica-yes it does. Every month the company calls (a medical supply company) to ask if our status has changed (do we need more/less, etc.). 2 cases (16, 14oz size cans) then get delivered to our home within 2 business days. It's so helpful. A small can goes for $45 as I'm sure you know!!

  • Jessica
    Jun 13

    Wow! That's awesome!

Anonymous posted in Allergies & Asthma Jun 09

How young is too young to have “allergies”?

Our 18mth old constantly has a runny nose & congestion! We went through many ear infections and ultimately had tubes put in at 10mths, it’s been a huge help bc we see drainage out the ear at times & can only imagine how many additional infections they’ve prevented. He’s on Claritin once a day but we see no significant difference. Pediatrician isn’t concerned & chalks it up to being ... More

  • Julie
    Jun 11

    Is he teething ?? That could contribute to congestion.

  • Anonymous
    Friday

    Thanks again, everyone! Went to ped and while we’re currently dealing with an ear infection, he’s bumping him up from Claritin to Zyrtec. However, additional diet recommendations greatly appreciated!

Fleas!!

I started a babysitting job this week but I found out they have fleas at their house because my daughter and I are allergic to fleas and both of us now have huge big red bites all over our bodies I don’t want to put my daughter through the irritation and pain but how do I tell them I can’t continue in a nice way

  • Lori
    Jun 08

    Make sure you are 100% about the fleas- take a picture of one you killed or something. Then just be honest with them. Let them know you don’t want to offend them but you found fleas and have bites and that you and your daughter are allergic. If they don’t believe you, show the picture. Good luck!

Anonymous posted in Allergies & Asthma Jun 07

Toddler allergic to our dog!

Just learned that my 18 month old is allergic to our dog. We have had our dog for 10 years, she will be 11 this fall. His symptoms are mild, including a running nose, and his skin does reacts with a rash when she licks him, which we prevent. He has had an asthma symptoms as well, but only in combination with other illnesses. Has anyone else had this happen, and if so, what did you do? Our dog ... More

  • Claire
    Tuesday

    I'd keep the dog in your situation, it can be managed.

  • Valerie
    Tuesday

    Weird idea here, but check the dogs food! I’ve heard of kids being “allergic” to the dog when in fact there’s an ingredient in the dogs food that triggers the child’s allergies. The case I recall was eggs as the protein source in the dogs food and the little girl was super allergic to eggs and thus the egg eating dog.

New allergy

My 7yo was just diagnosed with a dairy allergy. Anyone have any advice on helping him deal with this (he loves dairy)? Or how to adjust our house to be sensitive to him but also allow his other siblings to still eat dairy?

  • Kristin
    Jun 11

    Plain almond milk tastes no different in Kraft mac and cheese than cows milk... just saying lol #lactoseintollerent

  • Rach
    Jun 12

    Daiya brand has amazing alternatives for pretty much everything cheese related!

Katelynn posted in Money Jun 04

Question for those with special needs children

I have two young special needs children, one of which needs to be taken to specialist quite often. How do you financially support your family while making sure you child(ren) get the special care they need?

  • Katelyn
    Jun 05

    Depending on the conditions your children have and the households financial capabilities, there are some non-government programs to assist. Or there are some state funded therapies (if your children see any) like the Birth-to-3 program, which has been paid for for my daughter (free OT, PT, and speech).

  • Jesika
    Jun 05

    It’s not easy! We have an autistic toddler and a 7 month old. Our 7 month old has low tone and feeding issues. Between the 2 of them we have 8 therapy sessions a week. Our 2 year old has multiple issues and has to be seen by a few specialists. I had to give up my career to stay home and provide full time care for the toddler. My husband used to Uber on the side and was bringing an extra 30k a y... More

Anonymous posted in Allergies & Asthma Jun 03

Just got over allergies a couple of days ago. Nose isn’t stuffed but I can’t smell much of anything

Or taste subtle flavors, some things I can taste like sugar, salt, vinegar, etc. now I’m scared it won’t come back. Any advice?

Special needs mommas

Hey guys! Im new to the app. I was wondering if there are any other autism mommas on here. :) my 6 year old daughter is autistic. She's more towards the severe side of the spectrum. I find it hard to find other families who have similar struggles to ours.

  • Margaret
    Jun 04

    Hey Chrissy! I have a soon to be 4 year old autistic son :) Hes high functioning but we still have challenges. Everybody’s row is different but we share the same tools :)

  • Sheils
    Jun 06

    My grandson has just turned 5 years old and about 2 1/2 3 years after having raised now 3 adult children as my grandson was living with me of. Course I was with him 24/7 and knew he was slightly different but I couldn't put my finger on it but I kinda knew something was a bit off as even playing he didn't play like my 3 I had been donating to the autism association for about 10 years b... More

One year old with allergies

Not sure what to do. My son has drainage, runny nose, watery eyes, and sneezing. We live in Ohio and pollen content is high and I called my dr today and I can’t give him any meds yet because he’s not two. No fever. He did throw up a little from phlegm. What should I do?

  • Sheils
    Jun 04

    Zyrtec should be fine but consult your physician or pharmacist. And by vomiting it's great because he's bringing the phlegm up so it's not lying on the chest so with this condition it's always good 😊 if he can bring up some phlegm

  • Sarah
    Jun 11

    I know some that swear by building a tolerance with local honey <3

What are high allergen foods that you shouldn’t introduce as first foods?

  • Mama April
    Jun 01

    We discovered my daughter is highly allergic to eggs at 9 months while on a family vacation in WDW. (Thank goodness for the RN in the first aid center of Epcot. ) When everything was settled I realized out of all the people that cautioned to watch for allergic reactions no one covered what to do if it occurs. If you notice a rash after introducing a new food stop providing it and consult your... More

  • Cris
    Jun 06

    There's nothing you shouldn't introduce (except honey). It's actually better to introduce the top allergens as soon as you start solids and keep feeding them regularly to train your LO's immune system against allergies, particularly if your baby has eczema since allergy risk is 6x higher in that case.

Asperger’s and ADHD!

So our son has recently been diagnosed with Asperger’s, OCD and anxiety and our daughter with severe ADHD. Unfortunately we have had to put them both on medication in which we are not a fan of. Just wondering if there’s anyone out there going through the same thing and what has helped your little one?! We have been told that the CBD oil works miracles but any suggestions, thoughts or opinions w... More

I have a teenage son with a mood disorder.

He presents well in public but it often falls apart at home. It's hard to even carry on a conversation with him because of paranoia, perceived criticism, arguments and inflexibile thinking. Any parents out there in the same boat. Tips?

  • Elbita
    May 28

    I have heard about the diet. @Christine, would you elaborate a little more.

  • Sophia
    May 28

    Consider taking him to see a psychiatrist or psychologist - they are the professionals and have seen lots of young adults like this and should be able to offer good advice.

Anonymous posted in Allergies & Asthma May 26

Asthma help.

My 3yo has been diagnosed with Reactive Airway Disease. He's started on steroid inhaler on Monday but is starting an episode today. I have a little finger monitor for his spo2 and heart rate. Does anyone know what spo2 level and heart rate is cause for concern? He's sitting at 95 for oxygen at the moment but his pulse is 140. Does the steroid raise his pulse? Should I be worried?

  • Sophia
    May 28

    Steroids do NOT increase the pulse.

  • Sophia
    May 28

    normal heart rate for 3 year old is 80-120. Call his doctor or the advice nurse line if you have questions/concerns.

Elizabeth posted in DIY May 17

Weighted blanket

Anyone ever tried to DIY a weighted blanket for a child? I’m not super crafty, and just wondering if it’s worth time/effort to try to make, or just buy one? Thanks!

  • JJ
    May 18

    I bought one for myself and I’m in love with it! Seems difficult to make... need some sturdy thread!!

  • Jesika
    May 26

    I got lucky and found some on a bst board super cheap and it happened to be there exact weight for my child and it has made a world of difference for him!

Anonymous posted in Allergies & Asthma May 17

Lactose intolerant?

We started solids about a month ago, and I just introduced a half container of yogurt the last 2 days. (His first time ever getting dairy like that) and both days he threw up a handful of times throughout the day and into the evening. Nothing like a violent puke but just more a the spit up that he did when he was younger. Does this mean he is intolerant of dairy? Should I stop? Or keep trying?

  • TRACY
    May 17

    I agree to hold off for a couple days then reintroduce. It’s possible it’s an unrelated issue like maybe a new tooth is starting to come in. If no one in else in the family is lactose intolerant then it’s unlikely the cause, but of course worth being cautious about just the same. You could also try sheeps milk yogurt like Bellwether Farms. Sheeps milk is easier to digest than cows milk. It tast... More

  • Vonda
    May 18

    Did you breastfeed? If you did it wouldn’t be lactose (cause breast milk has lactose) it may be a milk protein that is only in dairy. Maybe talk to your pediatrician on what they think. They may have ideas on how to know for sure you can try at home.

Anonymous posted in Books & Reading May 15

My 9 year old is struggling with reading. I was wondering what I can do to help her?

ADHD and dyslexia = frustrated mother and child :(

  • Anonymous
    May 15

    Thanks. I will try this. Ask her IEP team to give me more things to work on

  • Mariah
    May 22

    Maybe look at understood.org a coworker of mine suggested to me for my toddler but hes a bit young compared to the focus on the sight but it could be helpful for you

First time eating eggs. Egg allergy?

My LO is a little over 7m. She had her doctor's visit the other day and told us we can start trying out foods like eggs, meats, yogurt, etc. She also had her last round vaccines. So yesterday morning, we gave her scrambled eggs for the first time. We finger fed her about 3 times just to try it out. She liked it. Within 30min or so she started getting couple of hives-like reactions on her fa... More

  • Futukeka
    May 15

    My son outgrew his egg allergy-we had him retested at 4 yo (our allergist said most kids who outgrow egg allergies do so around this age). Prior to this, we continued to give him products w eggs baked into them before the retest (bc the chemical composition of egg changes when cooked) but had to carry epi pen for years just in case he reacted. Of course now he doesn’t like eggs but that’s anoth... More

  • Susan
    May 22

    My baby reacted to scrambled eggs, but can tolerate other forms of egg. With all the research about early introduction decreasing the risk of allergies, I've been trying to keep baked egg in his diet to keep his system used to it. Here is an article about this -- https://www.allergicliving.com/experts/can-baked-egg-be-egg-safe/

Jordyn posted in Preemies May 12

Does anyone have a baby with a trach?

My son just turned one and was a micro preemie. I was just wondering if anyone else has a child with a tracheotomy? It’s really hard for him to even attempt to crawl cause of all the machines cause he can’t sprint. Anyone else going through this?

  • Jordyn
    Jun 12

    I try, but due to all the major surgeries he pukes if he’s doing to much. Our physical therapists are working with him every few weeks and teaching me stuff. Hopefully he can sit up soon and walk next year. He’s working hard and doing great. We just got the new trach (flex 10) I’m super excited!

  • Jordyn
    Jun 12

    Thank u!

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